The Time Has Come…..

“For we are His workmanship, created in Christ Jesus for good works, which God prepared beforehand, that we should walk in them.” Ephesians 2:10

Blah. That’s how I’ve felt this week. It’s not all bad, I’m just worn out. Plain exhausted. Picture me with my hair in a high bun with random hair escaping, oh and add in Houston’s humidity and my normally straight hair has some curl to it…well the random fly-aways do. So annoying. I forgot my hair dryer and really don’t have a reason to dry my hair anyway so it just goes up!

Last Sunday Chaney, Michael and I drove down with our truck loaded full of items for the next few weeks. The next time I see my home we will have Tyler with us. Chaney flew home Wednesday so it has just been me and Michael for a few days. These past several weeks are somewhat a blur with the weekly trips back and forth from Houston and the sense of urgency to accomplish and satisfy my nesting compulsion. Nesting is hard when you aren’t home very often, especially in the weeks and days leading up to delivery. I’ve done my best to prepare our home for Tyler’s arrival and have driven everyone else crazy in the process. The bummer is he won’t come directly “home” from the hospital as we will be 500 miles away! Talk about doing things completely different this time.

However, even with this impending deadline looming I’ve been able to slow down and savor time with my family. This family of mine consisting of us five, for the last time. Over the past few weeks our family has enjoyed pizza and movie nights, manicures & pedicures, fall festival at the school, breakfast dates before school, fun at Fiddlesticks Farm, lunch dates with just me and the girls. We’ve also experienced Julia’s school musical, Katelynn’s eye appointment and her first pair of glasses. We have snuggled on the couch, folded lots of laundry, cleaned rooms and picked up toys. I’ve helped with homework and listened to the girls tell me about books they are reading. Basically the mundane, but as my friend Bailey would say the magnificent mundane. We have been enjoying everyday life with a few special events mixed in, but overall my focus is on the intentionality of each moment and offering myself fully available and engaged to my family. All of the things on my “to-do list” can be tackled later, or not and it won’t be the end of the world. (I tell myself this as my OCD kicks in mid-conversation).

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Breakfast before school. Mom really needed to go to the store, buuuut the girls LOVED it!

I’m not sure why I become so sappy, aside from the obvious pregnancy hormones, but with the birth of each of our children I go through an emotional process. I am fully anticipating the joyful addition of new life, yet grieving what phase of life we are leaving behind. When Katelynn was born I had no idea what we were getting into with parenthood and was basically scared out of my mind. I was grieving the loss of independence but had no idea the joy that would come when she made me “Mommy”. With Julia’s arrival I was unsure how our family dynamic would change. I already felt I was lacking as a mother to Katelynn and didn’t see how I could love both children without taking away from the other. When Michael’s due date approached I FREAKED out because we were about to do this baby thing again, but this time with two school age children. Thoughts that cycled included….“Am I too old for this? Will this take away from my availability to my girls?” Yet without fail, the arrival of each of my children quenched any anxiety and I forgot my initial fears. We made it work, because of the overwhelming love we had for our children. For all of our children. There has never been a shortage of love but abundance. Love grows.

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Fun at Fiddlesticks Farms

With this pregnancy I haven’t gone through this process because most of my focus is directed on appointments and tasks. I haven’t thought much about what everyday life will look like with another sweet baby boy at the Vines house. Partially because I have no idea when we will actually bring him home so it just seems like an idea, but also because I haven’t taken the time to slow down and contemplate the season of life we are embarking on. Yeah, I know I’ve had months to prepare myself. Chaney laughs at me to no end because he thinks I’m a space cadet. I voice my thoughts and concerns often inquiring his opinion and am usually surprised how he has processed the same thoughts weeks prior. It takes me longer to work through the entire process in “thought-land” and I spend much of my time there. Just call me an idealist or a dreamer, but I really find this form of processing very productive and healing. I’m currently in the midst of this process. I don’t really know how I feel. I’m still working through it all, so it has been difficult writing a blog update. I’ve tried to write this for the past 5 days and I don’t want it to be solely information. I’d like to be transparent and real, but I can’t be vulnerable when I’m unsure where to go with it. That’s about as real as I’m able to be right now. I’m overwhelmed and the words aren’t coming as easily as I am used to.

We went to my appointment on Monday and based on the results of the ultrasounds, the doctors have decided to deliver sooner than we originally had planned. Basically my MCA scans were elevated and I am past 35 weeks so an IUT was not an option. Dr. Moise is confident that Tyler will be okay until delivery as there are no other signs of anemia, but he doesn’t want to keep him in the womb for the original goal of 37-38 weeks. We set the date for induction for next Wednesday and that has given us time to take several steps furthering Tyler’s development. I received 2 steroid shots aiding his lung development and a medication that will help develop his liver. Specifically this medication helps his liver have the ability to process bilirubin and lessens the likelihood of major jaundice issues. The doctors also increased monitoring of Tyler as anemia can set in extremely fast. They don’t believe this will occur, but it helped put me at ease. We found out Tyler is measuring 2 weeks ahead of his age and already weighs around 7lbs 12 oz (at 36 weeks). Although he won’t have the opportunity to grow to full term and be a monster baby like his big brother Michael, it looks like Tyler will also be a healthy size.

Tyler will have a mandatory observation in NICU when he is born and several blood tests to measure how affected he is by my antibodies. Several of these tests will continue for weeks after he is born. We don’t have any idea how long his stay will be in NICU and won’t know until he is here. There is a possibility of Tyler needing blood transfusion(s) after he is born, either immediately or over the next few months. All of these procedures are much less dangerous and intrusive once he is out in the world rather than in the womb. We are leaving these decisions to the medical team who see babies affected by antibodies on a regular basis. The problem continues after his birth if my anti-kell antibodies have attached themselves to Tyler’s red blood cells. This can cause late onset anemia and other health issues until the antibodies are cleared out and Tyler is successfully creating his own red blood cells. This is the reason for continued blood draws and monitoring for up to 12 weeks after birth. We have contacted Cook’s Children’s Hospital to be assigned a pediatric hematologist. Our local pediatrician will partner with Cook’s by writing weekly blood orders so we can have these done at home. Our hope is to prevent travel as much as possible while not sacrificing quality of care. If these tests and results are not monitored closely life long health issues can be the result. As long as we stay on top of these tests, Tyler will not have any long term health issues.

Chaney and I toured the NICU at Children’s Memorial Hermann (where we are delivering). I didn’t expect to be so emotional, but I LOST it. I’ve never been to NICU before and I realized not only how hard this will be, but also how blessed we are. This journey we are on is full of amazing medical staff and resources available to us and is something I don’t ever want to be ungrateful for. Although I have anxiety, it’s not about the care we will receive. This is just a brand new experience for us with a lot of “unknowns”. We are in great hands. On top of this, the Ronald McDonald House in NICU will be available to us if we need it. It is separate from the house we weren’t approved for.  If I’m released from the hospital before Tyler, this will be very useful in remaining close to him to nurse and getting rest myself. The RMH is on the same floor and the same wing as NICU with day rooms available for naps & showers and a separate waiting list for evening stays. Our apartment is only 1 mile away from the hospital (another blessing) but I’d rather not be that far away if not absolutely  necessary.

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Fun at the Houston Zoo

The girls will be here next weekend to meet their new baby brother. We had already planned for them to come down and celebrate Katelynn’s birthday next weekend so we are sticking with the original plan. I’m bummed that I will be unable to go around town with them, but I’m overjoyed and full of anticipation to hug their sweet necks. Who am I kidding I’ll bawl my eyes out when I get to hug and kiss them! They will just have to deal.  Michael and I were able to visit the Houston zoo with friends this week and had a blast. I know the zoo is on Katelynn’s short list along with the aquarium. More than anything, I’m so thankful we will all be together for her birthday. I can’t wait for our family to be together…all SIX of us. What?! It will take us awhile to settle in to our normal as the next weeks and months are unknown, but it will be wonderful. It will be our wonderful. It may take a while for the word mundane to apply, but soon enough the days and weeks will turn into years and it will seem like it has always been.

I’m relying on my Jesus so much through this all. I allow myself to remember all the situations in my life that have been difficult. I remember how my relationship with Him has grown stronger. When I have fears I voice them, I don’t try to hide them. I have no idea what the future holds, yet when I trust Him it all works out. When the next doubtful situation arises I remember what the Lord has walked me through. Trust has been formed. Hope is a real experience, not something merely spoken about. I still have new doubts and questions, but in my Spirit I trust my Comforter and Counselor. I just have to hold onto Him and trust the outcome to His plan.

Thank you for experiencing this pregnancy with us. I pray the Lord has blessed you abundantly as you’ve taken the time to pray for us. I don’t know how often I’ll be able to update our progress over the next few months, but know that I will do my best. It helps me to be vulnerable in the midst of it all and I’m so grateful for your support, comments and messages. I pray Tyler’s life be one the Lord continues to use to bring others to Him. I know Tyler has brought me closer to my King and I haven’t even seen his sweet face yet. We all have purpose to be used for His glory, may we not forget this highest calling.

“Many are the plans in the mind of a man, but it is the purpose of the Lord that will stand.”  Proverbs 19:21

Waiting to Exhale

My heart is confident in you, O God; no wonder I can sing your praises with all my heart!”         Psalm 108:1

Chaney and I are on our way back from Houston, a trip we have become familiar with. We’ve made the drive 4 times in the past 5 weeks. Depending on which route we take, it is a nice leisurely round-trip drive ranging between 950-1050 miles. We have tried them all to keep things interesting and see different parts of Texas. The drive is no big thing; when you’re in the third trimester of pregnancy, have ankles and feet that swell into painful puffy appendages and have to use the little girl’s room every few hours, the drive is a cake walk. Ha. One fact proves true whatever route we take…the further away we get from Midland the prettier and greener our surroundings become. We do love our hometown, but it sure is nice to get away and see trees, hills and life outside of West Texas even if it is for a doctor appointment.

Last time I wrote an update I was seeing my local doctor for ultrasounds each week. In fact, my last update was after a trip to Houston to check on Tyler. Since then we’ve had a few scares with high MCAs. One instance resulted in us making the trip to Houston fully convinced we would need a transfusion. The doctors even had us on the surgery schedule for the following day. I was a mess the 3 days leading up to my Monday appointment in Houston. Setting out on an 8 hour drive after getting less than favorable results was extremely unnerving. Leaving our kids not knowing exactly when we would be home or being able to answer their questions about Tyler added to the emotions. It was also the first time I’ve left Michael with someone other than his daddy and I was a teary-eyed, snot-nose, anxiety ridden mess. By God’s grace, Tyler was ok and not severely anemic however my stress levels had skyrocketed. Because of the added stress, time and miles between Midland and Houston, Chaney suggested that we begin having our appointments in Houston each week. Transferring our care provides us the expertise of The Fetal Center and Dr. Moise on a weekly basis. Also, if Tyler has become severely anemic requiring a blood transfusion, we will already be in Houston able to have the procedure done the next day. We won’t have to make preparations to go out of town, get the kids packed to go to Charlotte’s, pack ourselves and make the long drive strained with concerns of Tyler’s health. This provides ease of mind for us both and I’m so thankful to my man for discerning how to help ease the burden of stress that was suffocating me.

 

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Chaney patiently walking the Magnolia grounds with me. My man. My love.

As a result, the last 3 weeks we’ve driven down to Houston on Sunday for our Monday morning appointment. Each week we rely on MCA’s, scans specifically checking for anemia measuring the rate of blood flow through the middle cerebral artery, to let us know how anemic Tyler is. He is anemic, but not severely affected warranting the risk for an intrauterine fetal blood transfusion. The scores are given based on MoMs (multiples of median) with 1 MoM being normal and 1.5 MoM equating severe anemia. Fluid around the organs, termed ascites, is another identifying factor of fetal anemia, but we don’t want it to get to that point. Last week Tyler gave us another scare with a wide range of MCAs measuring 1.3-1.7 MoM. All of the wave patterns were legit. Normally they narrow down scans and give us a score of the best quality scan but it was more difficult last week. After the tech did her scans, Dr. Snowise came in and performed several of his own. He began to check Tyler’s positioning and the umbilical cord placement, all important details when a transfusion is needed. The high numbers were perplexing because there were no other visible effects on his organs. The scans are formulated based on a precise angle of the middle cerebral artery and not an exact science. The only precise measurement of anemia is through taking a sample of blood from the umbilical cord. This method has several risks and isn’t used unless a blood transfusion is required. Several factors can cause the MCAs to be inaccurate and give false highs. This day Tyler happened to be positioned head down, was practicing breathing and was fairly active, all factors making the scan more difficult. I was so thankful we were already at The Fetal Center and fully trust their judgment, because this 2 hour appointment was stressful enough while sitting in a room of world renowned experts. Dr. Moise was called in to help figure out what was going on. He looked at Tyler and said he was fine. We were given the green light for another week and made the trip home.

It’s time for me to get real with ya’ll. When I was looking at the screen watching the high readings I panicked a bit. I was hit with a wave of emotions. I hate that my baby has to fight to be healthy. I’m thankful that we are doing so well with such an aggressive antibody and I realize it could be a lot worse. I realize many lose their babies and this has been in the forefront of my mind since learning of my isoimmunization. I fight my emotions constantly not wanting to be over-dramatic because things are going great with all things considered, yet challenging myself to be honest with the internal struggle. Our baby boy is sick and I struggle with the reality of my body causing his anemia. My view of the womb as a place of growth and safety for my children before they have the strength to enter this world has been challenged this pregnancy. Chaney and I have spoken several times how we took for granted the ease in which our other children were brought into this world. It’s like I’ve taken credit for the life of my children. Now I’m realizing how naïve I have been. The props and praise for all life belong to God alone. He has ordained the life of each of my children for a plan and purpose and I’m blessed to be included in this plan as their mother. My children are ultimately His and through this experience I’m beginning to accept this reality, one that I’ve fought since becoming a mother. The one thing I couldn’t ever honestly pray, “God I release my children to you. I know they are yours not mine. I know you love them more than I ever could.” That prayer scares me. It still scares me, but I see the validity in it. I see the desperate need to release this illusion of control that continues to confront me as a glaring defect of character. I waste so much time and energy fighting the wrong battles. One thing I’ve begun to practice is fighting in prayer for my children. I cannot always protect them from this world and the sickness, hurts and sin that exist, but I can pray for them to know our Father whose name alone offers hope. I pray that their lives have a lasting impact on the kingdom. I pray for God to comfort them in their hurts and that they will have a love for Scripture from an early age. I pray that they will passionately pursue God’s will and plan instead of living in sheltered “safety”. I recognize these things offer them more than a mother who tries to shield them. As their mother I’ve been entrusted to equip them and point them towards my Jesus. This morning during my quiet time I ran across a verse that knocked the wind out of me. Talk about perspective.

“Where were you when I laid the foundation of the earth? Tell me, if you have understanding.”  Job 38:4

I fully know and accept this is our last pregnancy. We decided this before we had any inclination of the anti-kell antibodies we would combat during this pregnancy. I promised myself not to complain but cherish every moment of the aches and pains and to enjoy each movement of the precious life within me. I haven’t complained and I do enjoy Tyler’s kicks and turns, but it hasn’t been with the “normal” care-free bliss that I yearned for this final pregnancy. I count his movements to make sure he is healthy and not getting sick between scans. I don’t complain about aches and pains because I’m so happy my baby is still alive. I wake up in the middle of the night from nightmares of losing my boy. Up until my appointment yesterday, I haven’t bought anything for him because I didn’t want to get too attached in case something happened. I hate to even admit that or put those thoughts into words but it’s my truth. I must confess that I fell into a trap of hoping for the best, but expecting the worst. I tend to take that stance to protect myself from being hurt, but it’s a façade. Loss hurts no matter what. I didn’t even realize all the walls I have constructed until my appointment Monday.

Tyler is doing great and at 32 weeks 3 days he is already weighing 5lb 13 oz. We will deliver anywhere between the next 3-6 weeks. If he requires a transfusion after 35 weeks the risk of an IUT is greater than delivering early, so labor would be induced. We will not go past 38 weeks, so 6 weeks is the maximum time-frame. When Chaney and I spoke about this time table the relief was palpable and I think I exhaled for the first time in months. An enormous weight was lifted and I could breathe. For the first time I allowed myself to fully believe that Tyler is going to be ok…so I bought him a diaper bag, because he will need one. We gave ourselves a chance to relax, enjoy one another and permission to celebrate our pregnancy by breaking up the return drive home into two days. We stopped in Waco and went on a date. We had dinner, went to Common Grounds for coffee and caught a movie. This morning on our way out of town we stopped by Magnolia Market and grabbed pastries at the bakery, walked around the grounds and of course shopped. Chaney was a trooper and didn’t complain at all. We needed some time to just enjoy one another and I feel rejuvenated. I guess holding your breath for several months isn’t the best approach to life. My soul is so thankful for the fresh air.

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The diaper bag I ordered for Tyler (:

Something Dr. Moise said got my attention. We keep making it one more week, even though Kell is the most aggressive antibody and I have a critical titer. My Kell antibodies attack Tyler’s existing red blood cells, causing anemia, and suppresses the bone marrow from producing new red blood cells accelerating the rate at which a baby becomes anemic. Yet we are ok. Still. Praise the Lord. I don’t get it and I’m so grateful. Several have commented at how strong we are in walking through this season and I know we are clinging tightly to the Lord, but something else is going on. Ya’ll are lifting us and covering us in prayer. Thank you. Please know that we are aware and humbled by your love for us. I don’t feel strong but God enables me to walk through each day with grace. I’m frustrated that I don’t trust Him. After everything He has walked me through I’ve continued to try and shield myself by expecting the worst. I still have so much room to grow. I’m grateful that God isn’t finished with me yet and covet your continued prayers over this season we are in. Please continue to pray for Tyler’s health, specifically to make it to the 38 week mark which decreases many health obstacles he could face if born early. Chapter 46 of Isaiah has been meaningful throughout my pregnancy. Just in case I didn’t get the hint, Kaylea Gaines also text me verses from the chapter several months ago. I believe this is true for us all, even when we have doubts, God is faithful and his truth doesn’t waiver.

“Listen to me, descendants of Jacob,

All you who remain in Israel,

I have cared for you since you were born.

Yes, I carried you before you were born.

I will be your God throughout your lifetime-

until your hair is white with age.

I made you, and I will care for you.

I will carry you along and save you.”

Isaiah 46:3-4